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Aug 12 / nick

someone build this: put my tweets in my health record

There is a great deal of attention these days to the concept of electronic medical records (EMR). Sometimes we refer to them as electronic health records (EHR) or even personal health records (PHR). While there are semantic differences between each, the idea is the same: a complete, portable electronic snapshot of your health. At least that is the idea. In practice today we are really talking about an electronic record of your medical history. (notice I left out portable, complete and health).

Enter the idea of accountable care. Many industry experts are already envisioning a near future when providers will move from reaction to proaction. Rather than being paid to treat the symptoms that walk in the door, doctors may get paid for keeping you out of the office. A practical example is obesity. Instead of being reimbursed to treat the side effects of obesity (asthma, diabetes, joint pain, etc), a doctor may get paid for helping a patient achieve a healthy lifestyle and losing weight.

There is still something missing from this equation. And that is where your social graph comes in. A lot of us do healthy things all the time. According to Foursquare, the geolocation based social network, I have “checked in” to my gym 57 times since early March. I have gone to the farmer’s market 15 times this year. I have attended four medical education seminars (ok, those were work-related, but I still learned something). Here’s the rub, my doctor doesn’t know any of that. If he is going to be responsible for my complete health, shouldn’t those things factor in?

So, continuing my “someone please build this” series of blog posts, here is my latest plea: someone please build a conduit between my social graph and my health record. Let me opt in and chose which things I share online which should also go into my EMR to become available for anyone treating me. Tools like Foursquare come to mind as an obvious choice. Since it is based on location, it takes some of the effort out of participating; it just knows where you are. So when I check in to the gym, wouldn’t it be great if my health record was updated too?

My good friend and HCSM guru, Dana Lewis pointed out the power of twitter hashtags. What if we were able to define a specific, personal tag, say #NicksHealth. Every time I want to include a twitter update in my health record, I tag it with #NicksHealth. Last week, I had surgery on my knee to repair an ACL injury. Every day for the first week, I took a picture and loaded it into Flickr, the social photo sharing site and posted a link to the picture to Twitter. If I were able to tag it with #NicksHealth then my doctor would have a series of images showing the progression of my range of motion, wound healing, etc. When I update my Facebook page with details from physical therapy, that information could populate my medical record, along with my Foursquare checkins – my doctor would see just how compliant I have been with his rehab orders.

It doesn’t all have to be healthy. Providers need a complete snapshot of our lifestyles if they are going to suggest a course of care. Perhaps through incentives, competition or other means, patients may be encouraged to also share things that are less healthy. “I ate a burger tonight, with fries…and bacon…lots of it. #NicksHealth” – My doctor should probably know how often that happens in relation to my trips to the gym.

There are, of course, some challenges to this idea; including the burden of combing through all the data. Physicians may already feel like they have information overload. Without an accountable care model in place today, there is not much to entice them to pour over patients’ social graphs. In time, we will also need software that can automatically sift through the updates and present them in a meaningful way to physicians. However, the first step remains building the connection.

Every major social network has an API, or Application Programer’s Interface. APIs are a way to move data into and out of systems. If you use a twitter client like Tweetdeck or Twitter on your iPhone, you are using the Twitter API. Health providers, when considering their online offerings, would be wise to build in API functionality to online health portals.

Let people chose which data they want to share with their medical record. Providers can incentivize participation through reduced co-pays, social competition, etc. In return they get a rich flow of lifestyle information. When accountable care, meaningful use, EMRs and social graphs come together it will be a win for us all.

  • http://mightycaseymedia.wordpress.com MightyMouth

    Great idea! I don't think we're lacking the data aggregation protocols either – hell, even Google Alerts would work for smaller practices/facilities. Would require some human-power to monitor it, but if it's available on a mobile platform, it's in your hand already, right?

  • http://mightycaseymedia.wordpress.com MightyMouth

    Great idea! I don't think we're lacking the data aggregation protocols either – hell, even Google Alerts would work for smaller practices/facilities. Would require some human-power to monitor it, but if it's available on a mobile platform, it's in your hand already, right?

  • David Harlow

    Nick —

    In a perfect world, I would want my PCP to have perfect information about me, my health, my lifestyle, my exercise and eating habits, etc. Back on planet Earth, in 2010, my PCP will not want to see this information about me and the other X thousand patients in his panel because he is not paid enough/does not have enough hours in the day to read it/process it. He may be concerned that once that information is in your medical record, he will be charged with its knowledge and that you could turn around and sue him if some course of treatment he prescribed were counterindicated by information you tweeted into the EHR that he never read.

    Thus, the key barrier to this sort of innovation is not a technical one, it's a reimbursement issue. X years from now, my home state, the People's Republic of Massachusetts, may have successfully implemented the recommendations from the state AG's and other reports and legislation all moving us in the direction of kicking the fee-for-service medicine habit, in favor of global payments, medical homes and other alternative systems. Until that day arrives here and across the country, your plea is likely to remain a pipe dream, because of the information overload that is accompanied by neither adequate sorting and interpretation tools nor sufficient compensation to account for the added burden.

    If interested, check out some light reading <g> on the move to global payment, medical home and other FFS alternatives at http://healthblawg.com – esp. my podcast interview with Paul Grundy http://j.mp/2moK1k and my posts on the state AG report mentioned above http://j.mp/9EARRN and related legislative hearing http://j.mp/9lulRq

    – David

  • http://philbaumann.com philbaumann

    @NickDawson, you smart #hcsm boy –

    Your idea has officially become #141 of my original list of uses of Twitter in Halthcare! :)

    @David makes a good point about reimbursement.

    Nonetheless, as these media become more universal and patients start to realize they can do these things, we may see market pressures mount on providers to figure out ways to pull in data like this.

    @PhilBaumann

  • David

    The only problem I see is with the established medical community itself. I can see where making the info available is not a real technical stretch. Google has the infrastructure and enabling the social networks to feed it would not be too tough. But getting the doctors to proactively surf the data is another story altogether. That the info is there for emergencies is great, but evolving into a medical norm where doctors proactively treat people instead of reactively treating disease is quite a paradigm shift. That said, I guess we should get started eh?

  • Mark Ragan

    Followed a link on Twitter from that great blogger, social media doctor: @seattlemamadoc and found your terrific post.

    The two of you are fabulous communicators and pioneers in your field. Keep it up.

    Mark Ragan

  • vartabedian

    Brilliant. And timely in light of FB's Places. I expect a progressive integration of social and EMR over the coming decade. And this is the out-of-the-chart thinking that will get us there.

  • http://www.nickdawson.net Nick

    “out of the chart thinking” may be my new favorite phrase – thanks Brian!

  • http://www.nickdawson.net Nick

    Thank you very much Mark – I've long admired you and your team as well!

  • http://www.nickdawson.net Nick

    Thanks Phil! Means a ton coming from you!!!

  • http://www.nickdawson.net Nick

    Thanks for the insightful comment David!
    I think we are moving towards a model where office visits and retrospective care are a liability (certainly already true in the medicare world). This idea is predicated on the belief that providers will be reimbursed for holistic health – for keeping people out of the office – for that kind of model, they will need to understand social behavior of their patients and it will be financially advantageous for them to review the data.

    Practically speaking, if you are caring for someone who has a long term chronic disease, like diabetes, it is entire plausible that CMS will dock reimbursement for office visits, opting to instead offer periodic bonuses for healthy patients under your care.

    That all said… In today's model, you are absolutely correct, there is little to no financial incentive.

  • http://www.nickdawson.net Nick

    Casey, I think you nailed it on the head with the convenience factor!